"There are moments which mark your life. Moments when you realize nothing will ever be the same and time is divided into two parts, before this, and after this." -Unknown
January 13th was the day that marked 3 years in remission for Jackson. What a wonderful day for us!
I know that many people have stopped blogging. And in that case- many people have stopped reading blogs. But I wanted to update this to update hope. Hope for those families currently fighting AT/RT. Because the fight is real, and it continues for too many.
Jackson is healthy and happy and in remission for the third straight year. This miracle does not escape me. They gave him a 10% chance of survival, yet he's here.
We are dealing with long term side effects now. A constant runny nose, some bladder issues, along with other issues due to radiation. But to look at our boy now- you'd never know the battle he fought. You'd never know- and we love it that way. To everyone he meets, he's just a normal kid. A super polite and helpful boy. A boy who torments his little sister and rolls his eyes at his Mama. A boy who idolizes his Daddy. A boy who hides treasures along the baseboards in his room- thinking that if it's not in the middle of the floor, then his room will be considered clean.
Hope is real. Never give up hope- it was the only thing I could grasp onto some nights in the quiet hospital. Hope that life does go on. Hope for another day.
We are so happy to read postsm like this one
ReplyDeletePrayers continue on your behalf. I'm thankful for modern day miracles. Love to the family!
ReplyDeleteI just found your blog today while googling stuff about TPN. Thank you for continuing to update the blog! My son has neuroblastoma another cns cancer. We'll be done in 2 months! Keep posting the positive for the parents who need it. 😀💕 I was also surprised to read about your "fast in your ward." we are lds too!
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