The biggest thing that I am so happy to report is that we are all home under the same roof. We have been home for almost a month now, and I can't believe how fast time flies! Jackson did have to have an overnight stay at the hospital last week because he got a bag of platelets that were contaminated and had bacteria in them. So, as a precaution, the doctors wanted to watch him overnight just to make sure he'd be fine. He got several doses of IV antibiotics, but they sent him home the next day. Other than that little bump in the road, Jackson seems to be doing amazing.
At our last clinic visit I talked to the nutritionist about Jackson. I talk to her every week and I genuinely enjoy the time I get to spend with her. Last week she started Jackson on an appetite stimulant. We were hoping that he would start to eat, and then we could get him off of the TPN (IV Nutrition) that he has been on since the beginning of November. TPN is a good thing if your body is unable to eat, but Jackson should be able to eat, and eating is essentially better for your body. The good news is that the appetite stimulant is working! He is now eating, which is such a relief. He has eaten more this week than he has in the last 4 months combined. One day he ate an entire peanut butter and jelly sandwich, and yesterday he ate almost an entire can of chili. I think part of his eating can be credited to the appetite stimulant, and part of his motivation to eat comes from avoiding another NG tube. They told me that if he doesn't eat this week that they will put an NG tube back in- which was such an ordeal for Jackson and for me. I am glad he is eating now, what a relief!
Other exciting news is that Jackson's Wish from Make-A-Wish is getting closer to being granted. Right now we are scheduled for the big reveal in the middle of March. I'll post more info when it gets closer, because you are all invited to join us!